Our Mission


Our vision is to create a network of U.S. 501(c)(3) organizations to support the ME/CFS and other NEIDs community. This network will aim to strengthen its individual member organizations and guide them to collaborative efforts and effective resource-sharing. This includes mentoring current and future patient advocacy leaders to augment their leadership skills.The coalition will push for local, state and federal legislative strategies. Ultimately our goal is to find a cure for NEIDs.


We will strive to build each organization’s leadership strengths and match it with the needs of patients and the constituency they serve. We will strive to deliver projects that will solve the life-long challenges patients currently endure so they can do more than survive; so they and their families will thrive. We will promote quality-of-life solutions anchored on trust, perseverance, resilience, statesmanship, and personal empowerment.